Living With Sarcoidosis & Other Chronic Health Conditions

Everyone with Sarcoidosis should have this book. It makes you feel you are not alone and helps you understand how others cope and how we with Sarcoid have so much in common.

If you have read Barr's other book, "Me and Sarcoidosis: A Lifetime Partnership", you already know that his grammar leaves one wondering where his "editor" that he speaks so highly of got her training. My guess is that it was a friend who cringed at his errors, and while this is somewhat improved, it still needs much work to flow properly.Being a sarcoidosis patient myself, I dragged through the books in hopes of learning how to deal with the disease, and how to treat it. By the time I got through this book, I was skipping lots of repetition from prior chapters.I agree that there was too much focus on the worst case. Conversely, the writer may feel that he received solace from his religious beliefs, but I felt like he tried too hard to push that while being soft on useful facts.I did think this was an improvement over the first book, as it didn't focus so much on Barr's own case, but I'm still looking for something more useful out there.

As described

Lots of nice resources appear in the book and the author's story and those of his selected pen pals are frightening "worst case" sorts of hsitories. Unfortunately, the book is poorly written: passive, repetitive style and odd gramatical constructions distract the reader from the engaging content. Moreover, the focus on worst case scenarios and incompetent medical professionals is at great odds with my experience: I've been diagnosed with sarcoidosis twice in the past 7 years (I had a remission), each time within a month of odd chest X-rays, and each time in the absence of any symptoms whatsoever. Each time the doctors were very much on top of results and very quickly got me to specialists. Since I've never had a SINGLE symptom, the worst cases described in the book just don't speak to me, and may frighten readers unnecessarily.

Myself, I have sarcoidosis