Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers, Fifth Edition, Revised and Expanded

LOOOVVVEEE this book so much. If you have anyone in your life who is dealing with dementia/alzheimer's, get this book. Super easy to read because author writes many very short (like 1-3 pages) "chapters" on very specific issues related to a person with dementia. She is also a nurse and personal caregiver and has excellent first hand knowledge of how to best care for a person w/ dementia and how to make sure they maintain their dignity and respect at all times. She also uses appropriate humor which is appreciated. Her overall focus, as is in the title, is JOY. It's an excellent book and definitely personal and practical, not clinical. 10 stars.

Looking for something creative and inspirational? This is fantastic! Not a dull, fact driven, repetitive book. I've had enough of those. This is a great one for the experienced and inexperienced. Easy to flip through for a read here and there too. Enjoy!

Caring for someone with Alzheimer’s or dementia is an experience filled with challenges, but as Jolene Brackey beautifully illustrates in Creating Moments of Joy, it is also a journey of wisdom, love, and even unexpected joy. This book is an essential read for caregivers, family members of those with memory issues, and anyone who fears facing this disease in their own life. It is both deeply practical and profoundly inspirational, providing a roadmap for creating meaningful moments despite the difficulties of cognitive decline. Brackey’s approach is unique in its simplicity and wisdom. She does not offer a cure, nor does she present a rigid set of instructions for handling Alzheimer’s. Instead, she presents a philosophy—one that acknowledges the hardships while encouraging readers to embrace moments of joy, no matter how fleeting. The book is structured around different types of moments: • Defining Moments – Recognizing the early signs and understanding when it's time to make critical decisions. • Family Moments – Addressing the strain caregiving places on families and how loved ones can support each other. • Challenging Moments – Offering strategies to make the caregiver’s journey lighter, acknowledging that no one chooses this path. • Transitioning Moments – Teaching ways to sustain and trigger memories as the disease progresses. • Enhanced Moments – Finding opportunities to improve even the smallest interactions. • Final Moments – Encouraging caregivers to grow spiritually and cherish the wisdom gained along the way. What sets this book apart from other works on dementia care is its heart-centered approach. Brackey reminds us that while Alzheimer’s strips away memories, it does not strip away the ability to feel. A moment of laughter, the comfort of a familiar touch, or the sound of a loved one’s voice can leave an imprint that lasts even when memory fades. She encourages caregivers to focus on now, because for someone with memory loss, the present moment is all that exists. Brackey does not shy away from the realities of the disease, but she reframes them in a way that empowers caregivers rather than overwhelming them. She shares over 100 practical strategies, each designed to make caregiving more effective and fulfilling. These range from using personal history to engage loved ones in meaningful ways to understanding the emotional needs of those with dementia. She emphasizes that mistakes will happen but encourages caregivers to see them as learning opportunities rather than failures. One particularly moving story in the book highlights Brackey’s message about creating joy in the moment. She tells of a man with Alzheimer’s who had been an avid fly fisherman. Though his cognitive abilities had declined, his muscle memory and love for fishing remained. A simple act—handing him a fishing pole—triggered a moment of recognition and joy. He pantomimed casting a line, tying a knot, and reliving his favorite pastime. That moment was not just for him; it was a gift to everyone around him, a reminder that joy is still possible even in the midst of loss. This book is also an invaluable resource for those who are concerned about the emotional toll caregiving takes. Brackey emphasizes that caregivers need support and grace. She urges families to work together, to relieve each other when needed, and to acknowledge that caregiving is not just an act of duty but an act of love. This section will resonate deeply with those who have watched a spouse, sibling, or parent take on the primary caregiver role, helping them understand the need for compassion and assistance. One of the most profound insights in the book is that caring for someone with Alzheimer’s is not just about helping them - it is also about discovering who we are in the process. This journey forces us to slow down, to let go of control, to become more patient and present. It teaches us to value each moment rather than dwell on what is lost. It is a lesson in humanity, in love without expectation, and in embracing life in its rawest form. Brackey’s voice is filled with warmth, humor, and an unwavering belief in the power of love. She reminds us that while Alzheimer’s is a long goodbye, it is also an invitation—to connect deeply, to cherish what remains, and to let go of what we cannot change. Her wisdom offers a profound shift in perspective: rather than focusing on what is gone, we can focus on what remains. For anyone facing the realities of Alzheimer’s, whether as a caregiver, a family member, or someone fearing their own cognitive decline, Creating Moments of Joy is an essential read. It is more than a book - it is a guide, a source of comfort, and a reminder that even in the face of loss, we can still find beauty. In the end, the greatest lesson this book offers is that those with Alzheimer’s teach us how to live—not in the past, not in the future, but fully in the present moment. And in that presence, we find not just sorrow, but profound, lasting joy.

A terrific book for anyone dealing with friends or family with dementia or any memory issues. Hopefully saves frustration. I have purchased many copies to pass along.

A great guide for working with impaired individuals

This is a beautiful book filled with helpful information, shared by individuals who are experiencing the challenges of a loved one's mental decline. However, the stories are genuine & the perspectives shared are inspiring. This is not a sit down & read through from cover-to-cover book. It is definitely a book to be digested in morsels. Grateful for the Tips compiled & shared with those of us who desperately need to hang on, if even by a book rather than a thread.

Excellent resource! My mother had FTD with Parkinson’s and my husband has vascular dementia. This book has been so helpful.

Such precious joy and tender comfort in the middle of the loss and sadness of the disease! Jolene shares her wisdom with the sharing of others' stories too. This is a wonderful book that is good to read and reread for encouragement and help. It also is a nice gift to give to caregivers in the middle of dementia or Alzheimer's.

The book was exactly as described and it arrived quickly. Very happy. Thank you.

Amazingly helpful topics for families and primary/secondary caregivers.

Okay Dementia is not a subject any individual warmly welcomes into their life. However I have learnt two key points in my carer role. Firstly, like most things in life it is what it is. We did not invite Dementia into our home, but having arrived it is best to prepare as well as you can. Secondly, the illness is progressive and gets worse but as it does so it is possible to get some positive times. No one wants the Dementia road but accepting it is happening is one step on the road to helping the person with the condition. The great thing about this book I found is that it is bite sized. After the leaflets from the memory clinic you are very much on your own in the early stages. So many what ifs, maybes, possibilities, etc. Go on some online forums with no real knowledge and prepare to be depressed. Yes any of this can happen but rarely in the same order, the same intensity or the same time span. Your loved ones journey will be similar to others but also to a degree unique. I found reading and researching about Dementia depressing to a degree and still did not give me a road map. This book was very useful not as a read through in one go but a dip into source of knowledge. How to deal with situations which may or may not arise. That allows you to focus on what is in front of you, not depress you with all the possible eventualities that might happen or might not. Humour is used, common sense logic, the right balance certainly to me. I am three years into this journey and I now know far more than I did, have learnt new skills, have a much better understanding of how events will most likely develop. I just wish there were more resources like this to reach for when starting out as a carer of a loved one with Dementia. I hope Amazon will allow me to take a liberty on such a tricky subject and mention a few other resource centres which would in my opinion help others along this road of learning. If I can help one other person I would have done some good. Firstly get on the Talking Point forum on the Alzheimers website. Contributors have helped me several times with really useful first hand experience. It is a friendly and safe place to go. Just read the threads to start with but one day you will be glad to know there are other carers you can reach out to. Secondly Future Learn do some excellent courses on Dementia caring. They are good learning sources, free to access for a limited period or indefinitely for a reasonable fee, you can enter forums as you progress on the course. You stop feeling clueless, isolated, etc, get some knowledge at a level pitched at the ordinary carer struggling along. A few hours a week and it does bring rewards. Thirdly and only if you want to know more about Dementia. The University of Tasmania do excellent courses. More time demanding, intensive to a degree, but I finally had a much better grip on what Dementia is, how it progresses, research, supportive actions you can take to help a loved one by seeing the world through their diminished mental eyes. A more demanding course but rewarding in my eyes. All the above and this book have helped me develop as a Carer for a loved one with Dementia. I got over the initial emotional upset and these tools have helped me enormously. Caring is isolating, frustrating, energy sapping, etc, but it is also rewarding and has rounded me as a person. Please take care on any carer journey you are on. Please, please Amazon I know I have pushed non Amazon products here but they are all free, just little known about. Please, please let your platform carry this information and help others on a hard and difficult road. Good luck fellow carers.

Book very interesting and giving ways how to handle and things to say to help Alzheimer patients.

Very insightful. It has helped immensely with both of my parents and my mother in law.